Rare Disease Day 28/02/22

Last week we had a whole school assembly, thinking about what life was like for one small boy called Luke, who was negotiating starting school whilst living with a rare disease and how the empathy and kindness of friends eventually made the experience one that he would treasure for the rest of his life.

On the 28th February, we would love it if people would light up or decorate their home (inside and/or outside) to help raise awareness for Rare Disease Day. This day hopes to draw attention to wide variety of rare diseases, all of which need more publicity if they are to be able to afford much needed research, as well as build people’s knowledge and understanding of what it is like to live with or care for someone with a rare disease.

More information about Light Up For Rare Disease Day as well as ideas can be found here and a video with info and ideas here. 

Don’t forget to send photos of your decorations, your artwork, you dressed up or lit up in one or more of the RDD colours (pink, purple, lime green or bright blue) to me at c.bell@ststephensce.lbhf.sch.uk and to share them on social media (with parental permission) using the #LightUpForRare tag.

I will make a special post next week with all the fabulous photos I receive!